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CREATION OF THE OFFICE OF THE CHIEF DISABILITY OFFICER

Governor Hochul: “What I’m going to be doing in our budget is authorizing state agencies to designate up to 1200 positions, be filled by qualified people with disabilities. Let’s give people a real shot, a meaningful chance. And that will include up to five hundred positions for people who are qualified wartime veterans with disabilities.”

Earlier today, Governor Kathy Hochul announced the establishment of the Office of the Chief Disability Officer to advocate on behalf of persons with disabilities and appointed Kimberly T. Hill as the State’s first Chief Disability Officer.

VIDEO of the event is available on YouTube here and in TV quality (h.264, mp4) format here.

AUDIO of the Governor’s remarks is available here.

PHOTOS of the event are available on the Governor’s Flickr page.

A rush transcript of the Governor’s remarks is available below:

And this is an historic day. It truly, truly is. And I will call this also a day that is long overdue. And to all the advocates who never gave up the fight to recognize that the disability community, and it is vast, it is influential and it has a voice that needs to be heard, that finally we have an office.

Yes, you can clap for that because…

[applause]

And I’ll be talking about someone who is no stranger and is so… I’ve gotten more compliments from selecting Kim Hill than anything I’ve done as governor, so I’m feeling good about that.

First of all, Denise Figueroa, I want to thank you for being such an incredible champion for people who sometimes just need a little bit of hope and people who believe in them and believe in their possibilities. And that’s what this is all about as – new role as Executive Director of the Independent Living Center of the Hudson Valley.

And I also want to thank the champions that we have in elected office. And you have many, many friends and allies, and that would be Senator James Skoufis, who you’ll be hearing from – the sponsor of this bill. Phil Steck is the Assemblymember who’s also the Assembly sponsor not able to be here, something came up that he just could not get out of, but he sends his appreciation to everyone involved in this, in this long journey. As well as John Mannion, the Chair in the Senate of the Committee on Disabilities, John Mannion. And Tom Abinanti, Chair of the Committee on People with Disabilities in the Assembly, so thank you very much. I think he’s on his way. John McDonald, our local Assemblymember. And of course our mayor of Troy, Pat Madden. And I just saw, as I was coming up here, the Whistling Kettle. We’ve had a cup of tea there a few times.

And so – you don’t know this, but when I’m not sitting in Albany I’m probably slipping around Troy. I love the restaurants, the burgers at Slidin’ Dirty and walking the streets, it’s a wonderful, vibrant community and I just love coming here, and this, and having this center in this place is an important statement that this is an integration with a downtown community that is really coming back.

And so, the symbolism of that is, is truly powerful. You know, we think about the fact that New York State has not had this position in a permanent way. And that is an oversight – a decision that has now been corrected. But it’s just been inexcusable when you think about that, I mean, why not? And I also hold ourselves to very high standards here in the State of New York.

Whenever I think about a single policy. My first question is, does anybody else doing this? What’s going on in other states? I mean, how do we measure up in terms of our metrics, and how we’re serving our people? Because we are the Empire State, and every area we touch has to be a model for the rest of the nation. We should always be the best.

And in this is an area that I have examined closely. And when you think about the fact that our employment levels for example, are not what they should be. Look at the fact that 35% of people with disabilities, 18 year to 64, living in New York State, are employed. 35% employed, that puts us at 38th out of 50 in the nation. That’s not the category of statistic that I’m real proud of. So I know we can do better there. We also have to talk about the fact that 30% of individuals live in poverty. Another area that needs an intense focus. That should not be a statistic that exists, after several more years of focus on this.

I want to make sure that we are among the best in serving these communities as well. And people living with physical, developmental, psychiatric, sensory, mobility disabilities, they have had to endure a lot. And housing issues. I mean, the complication behind getting something as simple as a home that meets your needs. And I’m investing, with the support of the legislature, hopefully in a few more weeks, we’ll get this through the legislature, a $25 billion dollar affordable housing plan. Within that, tens of thousands of units for supportive housing. We need to make sure that we are meeting people where they are. They need to have, not just a roof over their head, but a roof over their head and services, sometimes, that also allow them to excel in that environment. That is what I’m pushing for as well.

I also having spent time in Congress as a member of the Armed Services Committee, and on that journey it took me to places like Afghanistan, but really had me be embedded with the individuals once they returned from that service. And so many individuals went there, young people full of life who, because of a deployment, or multiple deployments, they return either with physical or psychological disabilities that we as a nation are responsible for helping them heal from. That is our obligation as fellow Americans. And we need to make sure that we’re providing housing for veterans and more supportive services, as well as employment for our veterans with disabilities as well. They have unique needs. They’ve been through a unique experience, and we need to recognize that. Again, meeting people where they are with their life’s experiences.

And so, how do we do that? Well, we get a superstar. We find someone whose passion and reputation is stellar, nationally known, and when I say I’m putting people in place, I want them to be national leaders. I want the rest of the country, when they have a conference on how we deal with the disability community overall, and how we meet people and meet their needs, I want them to say “Let’s look to New York because New York is making a difference.” And very quickly. Those of you who are getting to know me, I’m the most impatient person you’re ever going to meet. I’m like, this should have been done yesterday.

And I have a person at my side who is going to do that. And that is Kim Hill. Kim is going to be our state’s very first Chief Disability Officer, our Chief Disability Officer. We know her because she served for the New York State Assembly, our standing committee on people with disabilities. She served as the Director of the Assembly Task Force as well. And she just has that demeanor and those relationships that are already existing, that are going to truly benefit us as we speak.

There’s other areas we can do as well as I’ve now set the bar very high for you, Kim, very high. I have no doubt that you’ll meet this. But also we’ve made other investments in high need areas. $240 million dollar increase in investing in schools for children with disabilities.

Also, I want New York State to be a model employer. I’ve looked at other states. I’ve talked to Governors. I’ve talked to Lieutenant Governors in the seven years I was Lieutenant Governor. And I know that there’s others who are breaking territory that we’ve not yet accomplished. Let’s see what’s out there. Let’s be the model that other states look to. And I believe we can get there.

And also what I’m going to be doing in our budget is authorizing state agencies to designate up to 1200 positions, be filled by qualified people with disabilities. Let’s give people a real shot, a meaningful chance. And that will include up to five hundred positions for people who are qualified wartime veterans with disabilities. You’re also going to be coordinating our response to the implementation of American with Disabilities. You’ll also be chairing the most integrated setting, coordinating council. I’m going to fill up your days and make sure that we are not only compliant with Olmsted, but also, as I said, becomes a model.

And that is what I’m very excited about. We’re also going to expand the New York State Commission for the Blind’s Business Enterprise Program. We’re going to take care of that. We have more work to do there and I really do believe in tremendous potential there. So, all New Yorkers deserve the best. They deserve the best representation in government. They need a champion who is directly in the governor’s office, part of the chamber so there’s direct accountability, which I think is important. I know it’s important.

And because the buck ultimately stops with me. But I will be judged by not just what I do, but how all of us can respond to the needs of this community, which as I said has been overlooked for far too long. And Kim, you are the person I have trusted. High confidence, and we’re going to working very closely together. And so bring me ideas, bring me the innovations, bring me the ideas that come out of this community, but also what’s happening in other states and indeed around the world.

We need to be the best. Whatever we need to do, we have to be the best because we are the Empire State. Our motto is Excelsior, and that is what I’m looking to aspire to. So ladies and gentlemen, let me present to Kim Hill, our very first Chief Disability Officer.

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Media Op/Ed Commentaries

Commentary: Aid in Dying Act offers too few protections for the disabled

Melvyn R. Tanzman and Lisa Tarricone

Jan. 12, 2022

As longtime disability rights advocates, we have seen our lives marginalized and devalued by the medical establishment. We agree with the principle of a right to self-determination; however, a balanced perspective of assisted-suicide legislation is frequently missing from the discussion.

The disability community’s core message is that if assisted suicide is legal, some people’s lives will be lost due to mistakes, coercion, and abuse, and that’s an outcome that can never be undone.

New York’s bill on physician-assisted suicide, the Medical Aid in Dying Act, is being marketed as merciful, where a terminally ill patient would have the option to end their suffering with a lethal dose of medication. But its advocates neglect to address how this same law would legalize assisted suicide in a manner that would pose mortal danger to vulnerable and marginalized people.

In a recent study of doctors’ perceptions of disabled people published in Health Affairs and reported in the Harvard Gazette, 82.4 percent of the doctors surveyed felt that people with disability have a worse quality of life than others and fewer than 57 percent said they strongly welcomed disabled patients. The lead author stated, “The magnitude of physicians’ stigmatizing views was very disturbing.” Simply put, we don’t trust all physicians to make decisions about life and death.

The current pandemic only serves to highlight these concerns. A representative of Oregon Disability Rights has said regarding care during the pandemic, “We’ve had … cases … where, essentially, medical staff are encouraging patients, even ones who have relatively clear expressed wishes to get the full measure of assistance, to convert to a do-not-resuscitate … status, essentially because of their disability.” A Texas hospital refused to give COVID-19 treatment to a 46-year-old Black disabled man, with his wife being told he had little quality of life. He subsequently died. In times of crisis, society’s implicit biases are more likely to influence critical medical decisions.

How will New York state assure that people, especially those with cognitive issues, are not being influenced by family members and others who view them as a burden? Current legislation in New York has no realistic way of protecting individuals from mistakes, coercion or abuse and lists no reporting requirements. Medical confidentiality prevents oversight. No independent witness is required during the death of an individual. In a world where abuse of persons with disabilities and seniors is rampant, this alone is cause for concern.

Assisted-suicide laws in other states direct that a doctor be satisfied that a person’s decision to die is not being unduly influenced by another. It is not clear how office visits can yield this information. If doctors start with the presumption that a person’s illness or disability inevitably diminishes his life, evidence of undue influence can be overlooked. How will the state Department of Health, which has been terribly remiss in monitoring our loved ones’ health and safety in nursing facilities, adequately monitor these potential problems?

We know a cultural divide exists between those with and those without a disability. Will some folks want to end their lives because our health care system cannot assure a good quality of life, economic security, quality affordable accessible housing. adequate support services, and a life free from the threat of unwilling institutionalization? These are practical and societal issues that doctors, focusing on whether a condition can be cured, may lack the knowledge or perspective to solve.

We do not question the “good intentions” of this legislation, and we believe most doctors do try to do their best for their patients. However, physicians, policymakers and legislators are part of a society which accepts glaring health care disparities. Nothing about their training or expertise puts them above the implicit cultural biases. Unless advocates for assisted suicide address and not trivialize these critical issues, any supposed safeguards of assisted-suicide laws are illusory. In issues of life and death, we believe the state should err on the side of caution.

Lisa Tarricone of Poughkeepsie is executive director of Taconic Resources for Independence.   Melvyn R. Tanzman of Yorktown is a retired executive director of Westchester Disabled on the Move.

This excellent piece was excerpted from Times Union expressing the disability community’s opposition to assisted suicide. Click here for the actual article in the Times Union.

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Media Press Releases

STUDENTS WITH SPECIAL NEEDS WILL NOT RECEIVE APPROPRIATE EXTENDED SCHOOL YEAR INSTRUCTION THIS SUMMER

FOR IMMEDIATE RELEASE                     Contact: Lisa Tarricone/ 914.523.8922

June 28, 2021

Remote learning will impose continued learning drawbacks to over 200 students with special needs due to Salt Points BOCES summer closure

Poughkeepsie: After nearly a year and a half since the COVID pandemic shut down school classrooms, imposing remote leaning on students within Dutchess County’s 72 districts, the impact of these closures has been most harshly felt by students with disabilities, who struggle with remote learning, modified or inconsistent schedules and hybrid learning models.  

The closure of the Salt Point BOCES campus this summer has now made this challenging situation even worse for these students, the majority of whom are diagnosed with severe cognitive disabilities.

Extended School Year (ESY) instruction is provided by Salt Point BOCES during July and August to students with special needs who are identified as at risk for regression through their school district’s CSE. ESY provides in-person learning supports to students with disabilities during the summer break to allow for a continuum of their educational experience. Taconic Resources for Independence (TRI) first became aware of the closure of the Salt Point campus in mid-May and identified as many as 210 students who would be impacted due to the BOCES campus closure.  Although Dutchess County BOCES Administrators attempted to find an alternative location in one of the 13  Component School Districts and met with the Superintendents of these districts, none were willing to accommodate these students within their respective school buildings.

“We continue to hear from families of students of special needs as well as educators that remote learning is not a substitute for in-person learning,” says Lisa Tarricone, TRI executive director. Parents have emphasized that even if they were home, they would be unable to help and meet the high needs of their child in the same way that a specialized educator does, she adds.

Daniel Gonzalez, a father of a student that attends Salt Point BOCES says “If my son’s school is only offering the option of remote summer, it will not work to prevent regression and close his learning gaps!   Giving him remote means giving me the job of teaching and trying to support him in ways that I am not trained to do.  I am not a teacher and having parents try to fill or supplement these teaching roles, negatively impacts and strains our relationship as parents and children.” 

TRI’s Special Education Advocates have been hearing from numerous parents who are expressing concern that their children will continue to experience behavioral and learning regressions due to the COVID pandemic, which will now be exacerbated with remote ESY this summer.

“To now offer a remote remedial program to those students who have already been gravely affected by this pandemic is an additional, unjust inequity to the students and their families,” says  TRI Special Education Advocate, Jennifer O’Neill.

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Media

Your Input is Requested On the Spending of Federal Funds for Student Education

The New York State Education Department (NYSED) is seeking public input in the development of the plan for the use of $8.99 billion in federal funds allocated to New York State under the American Rescue Plan (ARP) Elementary and Secondary School Emergency Relief (ESSER) fund. These federal funds have been provided to assist New York State’s Local Educational Agencies (LEAs) and NYSED, as the State Educational Agency, to help safely reopen and sustain the safe operation of schools in the current academic year and beyond and address the impacts of the coronavirus disease 2019 (“COVID-19”) pandemic on New York State’s students by addressing students’ academic, social, emotional, and mental health needs.
To promote accountability, transparency, and the effective use of ARP ESSER funds, NYSED is soliciting public input from all stakeholders, including but not limited to:
students;
families;
Native American Nations;
civil rights organizations (including disability rights organizations);
school and district administrators (including special education administrators);
superintendents;
charter school leaders;
teachers;
principals, school leaders, other educators, school staff, and their unions; and
stakeholders representing the interests of children with disabilities, English learners, children experiencing homelessness, children in foster care, migratory students, children who are incarcerated, and other underserved students.

Stakeholders are asked to visit the ThoughtExchange platform to provide their thoughts on following question regarding the New York’s ARP ESSER plan:

As we prepare for the next school year in New York State, what are the most important academic, social emotional, and/or mental health supports for schools to provide to serve all students (i.e., general education students, students with disabilities, English language learners, and other students most impacted by the pandemic)?

Responses received by May 24, 2021 will be reflected in NYSED’s final ARP ESSER plan.

Thank you for your contribution to this important effort.
Download Press Release
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Sign up for the City of Poughkeepsie’s Emergency Notification System

The City of Poughkeepsie has a great way for residents to receive emergency notifications and encourages people to sign up for them.

Through the Hyper-Reach Broadcast system, residents can select whether they want to receive notifications via email, text message or telephone call, or a combination of these options.

The system can be used in an array of circumstances, from locating missing children to evacuating a neighborhood in the event of an emergency. You can also choose automatic weather alerts for the City of Poughkeepsie. You can enter your home, business and/or church address, or an address of a family member who lives in the City of Poughkeepsie.

Anyone who would like to receive community alerts may register for Hyper-Reach notifications here or call 845-205-0596. The service is available in English and Spanish.

Emergency messages will be coordinated with the assistance of the City of Poughkeepsie E-911 Center and the City of Poughkeepsie Police Public Information Office.

The system can also be used to send out non-emergency community messages, such as known road closures and community activities, to anyone who has signed up to receive alerts.